Patient Resources


Thursday, January 6, 2011

multiple sclerosis is a debilitating disease that causes a lot of pain and suffering. there are many ways to help control you symtpoms. it is very important to stay up to date with the most current treatments and also try holistic remedies. for anyone who has been affected by ms in their life, there is hope and everyday we are getting closer to a cure. be sure to check online for mswalks in your area. participating in these walks helps raise funds for more research.

Sunday, July 25, 2010

Potentially Good News

An Italian doctor says that he came up with a cure for many types of MS. He also feels that he knows what cause these types of the disease. The doctor's name is Paolo Zamboni. He says that there are pathways in the brain that get rid of extra iron that the brain does not need. In the brain's of MS patients, they passages are blocked, which causes a build up of iron in the brain. The cure, he says, is a surgery to open some of the main veins in the brain that aid in moving this extra iron. his research all started when MS hit close to home, his wife was diagnosed. He began doing deep and intense research on the disease and found very old information on a the theory of iron build-up as the cause. When the iron builds up in the brain, it damages blood vessels that are vital to the body. He began taking ultrasound's on all of the patients he was treating for MS. Surprisingly these ultrasounds confirmed his theory. More than 90% of the patients have some sort of blockage in the veins that drain blood and iron from the brain. He has done the operation on 66 people, including his wife. 73% of the patients the operation was done on are completely free of MS symptoms. his wife has not had one attach since her surgery. Researchers and support groups from around the world are absolutely thrilled at the idea that there may be a cure for Ms and that it may just be this relatively simple operation. In the operation a catheter is inserted in blood vessels in the groin and then it travels all the way up to the effected vein in the brain, and places a balloon in the vein opening it up. The results are immediate and the operation is not too risky. In some cases the balloon is not enough so a metal stint is placed in the vein instead, which keeps the vein open permanently. Great News, researchers around the world are doing studies and if this cure is accepted, then these surgeries will be available all around the world.

Wednesday, June 30, 2010

Jun 10, 2010
Sign up for the live webcast, “What’s new in MS research and treatment”: June 30, 1:00 – 2:30 p.m. ET
On June 30, join Dr. Patricia O’Looney, Vice President of Biomedical Research at the National MS Society, as she moderates a panel of experts during a live webcast about “What’s new in MS research and treatment,” focusing on new leads in stopping, reversing and preventing multiple sclerosis.
Topics include:
Oral and other new therapies on the horizon
Nervous system repair and protection research underway
International overview of chronic cerebrospinal venous insufficiency (CCSVI) research
Moderator:
Dr. Patricia O’Looney, Vice President, Biomedical Research, National MS Society
Panelists:
Dr. Loren Rolak, Professor of Clinical Neurology at the University of Wisconsin, Madison and Director, MS Center at The Marshfield Clinic in Marshfield, Wisconsin; Oral and other new therapies on the horizon
Dr. Peter Calabresi, Professor of Neurology and Director, Johns Hopkins MS Center, Baltimore, MD; Nervous system repair and protection
Dr. Robert Fox, Staff Neurologist and Medical Director, Mellen Center for Multiple Sclerosis Treatment and Research, Cleveland Clinic, Cleveland, OH; CCSVI research
Time: 1:00 – 2:30 pm ET
There is a webcast today about Ms and the newest treatments, you can ask questions live to doctors and here about Ms and anything new they know about it! Just go to http://www.nationalmssociety.org/index.aspx. I posted the information in the blog above! Hope you all participate!!!

Wednesday, June 23, 2010

Great news! There is a new medication called GIFT15. It has not yet been tested on humans, but it successfully reversed MS in mice and put the disease into remission. This could potentially be a great thing for the many people in the world who will be diagnosed with MS. This treatment suppresses the immune system's response to attack the Myelin Sheath. Furthermore it may even be used to treat other autoimmune diseases such as Chrohn's disease, Lupus, and arthritis. It may also work for organ transplant recipients whose bodies' reject the new organ. Two proteins are infused together in order to make this medication. Then the B-cells, which are a form of white blood cells, are extracted from the mice. The cells are then placed in a petri dish and combined with the new medicine, and intravenously put back into the mice. There have been no notable side effects in the mice and any mouse that has been treated no longer has the disease. There are a few downsides though. The first is the fact that it has yet to be tested on humans. The team that discovered the drug stated that they need the right financial resources and partnerships to take the next step. The other downside is that it only works on patients that have MS in its earliest stages. To read about the treatment go to http://www.sciencedaily.com/releases/2009/08/090811143725.htm.

Saturday, June 19, 2010

Multiple Sclerosis also known as MS is categorized as an autoimmune disease. The body's immune system attacks the white matter that surrounds the nerve endings on the receptors in the central immune system which is composed of the brain and the spinal cord. When this white matter, technically named the myelin sheath, becomes damaged it can cause all sorts of side effects due to messages being delayed that are being sent from the brain to various parts of the body. Scientists have yet to find a cause for MS so there is no way of preventing it. The current treatments out for MS right now are only treatments for the side effects and pain associated with the disease. There is no cure for MS but there are ways to make living with MS easier and more comfortable. This blog is for anyone who wants to know about MS or anyone who has the condition. I will be updating this blog frequently and letting you know any new treatments, medications, or studies that I hear of. Please see the YouTube video on this site to get a visual on what MS does to the central nervous system. If you need help with finding the right medications for you or you want to share your experience with a MS medication, please select the link for the survey on this site or if the medicine you use is not listed, please go to www.rateadrug.com and select Evaluate your treatment. type in the drugs name and at the end of the five minute survey, when it asks you how you heard about rateadrug.com select PPREP intern on the drop down menu and type Leyla in the Alias box. I am pre-med and I am a student intern trying to spread awareness about MS and help people find the right treatment. Even if you are taking a supplement or alternative measures such as yoga you can write it in rateadrug.com and help others!!